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Product Description
Wendy is a perky, vivacious adolescent entering middle school with a lifelong vision of becoming an cheerleader. Wendy has been called bendy by family and friends because she’s been limber and flexible throughout her life, earning her the nickname ‘Bendy Wendy.’
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As soon as she’s about to realize her ultimate aspiration of making the cheerleading squad as a flyer, Wendy worries that her dream will be shattered by constant physical issues plaguing her during rigorous practices and performances.Â
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On the outside, Wendy looks perfectly ‘normal,’ but clearly something more is going on. Join Wendy and her parents on their journey through a diagnosis and revelations of Ehlers-Danlos Syndrome / joint hypermobility, an ‘almost’ invisible genetic syndrome. Â
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“Bendy Wendy and the (Almost) Invisible Genetic Syndrome… A story of one tween’s diagnosis of Ehlers-Danlos Syndrome / joint hypermobility†was written to fill a need for families, children, and tweens that find themselves in a position of understanding and explaining, in basic terms, Ehlers-Danlos Syndrome and the issues associated with it.
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It’s been thoughtfully developed by bone and connective tissue disorder expert Dr. Brad T Tinkle and his award-winning children’s book author wife, Laurren Darr. For almost a decade, they had dinner-time conversations on how to better serve and reassure children and families affected by Ehlers-Danlos Syndrome / joint hypermobility.  “Bendy Wendy and the (Almost) Invisible Genetic Syndrome… A story of one tween’s diagnosis of Ehlers-Danlos Syndrome / joint hypermobility†is the culmination of that goal.
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Details were last updated on Dec 24, 2025 03:53 +08.
