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Mo A Loeys Dietz Syndrome Memoir Kindle Edition

by Kate H. Jurgens RN (Author), Gretchen Oswald MS CGC (Foreword), Hal Dietz MD (Foreword) Format: Kindle Edition
4.7 4.7 out of 5 stars 16 ratings
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Kate’s second pregnancy was not much different than her first, but when her daughter was born with a number of birth defects Kate recognized from her work as a neonatal intensive care nurse that all was not right. Mo’s feet were turned and her hands were closed tight. When she cried a cleft palate was found. It would be nine and a half years and 17 surgeries later when Mo would finally be diagnosed with Loeys Dietz Syndrome, a rare connective tissue disease that allows aneurysms to grow throughout the entire body as well as wreak havoc on the joints and soft tissue.

Mo A Loeys Dietz Syndrome Memoir is compiled mostly from journal entries over the course of Mo’s first thirteen years of life. Kate shares her journey to discovery of a deepening Catholic faith, mothering a child with special needs while caring for her other three children and strengthening her marriage, all while expanding her nursing knowledge.

Readers will be entrenched in the medical mystery right along with Mo’s family and the physicians trying to solve the puzzle. Mo’s spirit is triumphant even when faced with a rare genetic syndrome.
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Previous page
  1. Print length
    433 pages
  2. Language
    English
  3. Sticky notes
    On Kindle Scribe
  4. Publication date
    June 14, 2012
  5. File size
    4168 KB
  6. Page Flip
    Enabled
  7. Word Wise
    Enabled
  8. Enhanced typesetting
    Enabled
  9. See all details
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Product details

  • ASIN ‏ : ‎ B008C3XS7Y
  • Publisher ‏ : ‎ CreateSpace Independent Publishing Platform; 1st edition (June 14, 2012)
  • Publication date ‏ : ‎ June 14, 2012
  • Language ‏ : ‎ English
  • File size ‏ : ‎ 4168 KB
  • Text-to-Speech ‏ : ‎ Enabled
  • Screen Reader ‏ : ‎ Supported
  • Enhanced typesetting ‏ : ‎ Enabled
  • X-Ray ‏ : ‎ Not Enabled
  • Word Wise ‏ : ‎ Enabled
  • Sticky notes ‏ : ‎ On Kindle Scribe
  • Print length ‏ : ‎ 433 pages
  • Customer Reviews:
    4.7 4.7 out of 5 stars 16 ratings

Customer reviews

4.7 out of 5 stars
4.7 out of 5
16 global ratings

Top reviews from the United States

Lisa Ott
5.0 out of 5 stars Informative
Reviewed in the United States on February 5, 2013
Verified Purchase
After our geneticist told us that he believed that our daughter may have Loeys Dietz syndrome we went home to find out all we could. There are a few informative websites, however we really wanted to know how this may affect our family in our day to day life. We went to Amazon and did a search to see if anything would come up and to our surprise this book was there. Even though the affects of this syndrome, to some regard, may vary from one person to another we took great comfort in reading a book about this close family from the midwest and how with each difficulty they became stronger and closer because of it. After reading this book the prospect of Loeys Dietz syndrome didn't look as hopeless. This book is inspirational, tear jerking and empowering. I found myself crying and even laughing at times.It is very well written and an easy read. I highly recommend this book to anyone that is facing any rare connective tissue syndrome such as marfan and ehlers- danlos, etc... as well.

May God continue to bless the Jurgens family!
One person found this helpful
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RLL
5.0 out of 5 stars A moving memoir
Reviewed in the United States on July 7, 2012
Verified Purchase
A very moving book that shows the incredible strength of a mother and her quest to seek care for her daughter with a rare gentic disorder. As a mother, it instilled in me that as parents we must always be the first advocate for our children and their best interests. As a healthcare provider, it make me re-think how I interact with my patients by listening and supporting them in their diagnosis and treatment.
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David M. Bobke
5.0 out of 5 stars A Touching, Heartwarming Account
Reviewed in the United States on September 26, 2012
Verified Purchase
This is a true life account of the birth of a child with a very rare condition, how the family fought to find out what it was and how the child has grown into a wonderful young lady. I am fortunate to know the aunt of Mo and to have therefore heard even more inspiring tales of Mo's life.
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Pamela Kirby`
4.0 out of 5 stars Insightful
Reviewed in the United States on February 26, 2013
Verified Purchase
With so little information on this rare syndrome, it was good to read something that wasn't all Medico. She is a fighter and reminds me of my own daughter. Worth reading, but be warned it is a sad at times.
One person found this helpful
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RJM
5.0 out of 5 stars Inspirational
Reviewed in the United States on June 22, 2012
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Inspiring book, allowing us into the hardship and trials of a family with first an unknown then rare genetic birth defect. Their faith is what held them above the water through it all. The strength of Mo for all she goes through is so apparent, taking the next surgery in her stride. Highly recommended.
One person found this helpful
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JML
5.0 out of 5 stars Fantastic!
Reviewed in the United States on June 26, 2012
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An excellent memoir about a family's strength, love and faith. Beautifully written! Mo is an amazing young woman with an exceptional family. I highly recommend this book! You won't want to put it down.
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Tony
5.0 out of 5 stars Five Stars
Reviewed in the United States on November 18, 2017
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Awesome Read. Mo is the best!
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Michelle
5.0 out of 5 stars A great memoir
Reviewed in the United States on July 29, 2013
Verified Purchase
Hard to put down. Because of people like Mo, my son is alive today. Love how Kate brings faith into action.
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