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The Ehler Danlos Patient's Sourcebook Paperback – November 18, 2014

by Paul Kalman MA (Author), Johnson White MD (Editor)
3.5 3.5 out of 5 stars 29 ratings
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Ehlers-Danlos Syndrome (EDS) affects the connective tissues; the joint and skin problems are due to issues with collagen, proteins that stabilize the connective tissue and give it elasticity. Prior to 1997, there were 10 recognized types of EDS which were classified by Roman numerals (e.g. EDS I , II and III), but this has now been simplified to six major types. Each type has its own features. For example, the vascular type of Ehlers-Danlos syndrome carries an increased risk of organ rupture, including tearing of the aorta and rupture of the uterus (womb) during pregnancy. All types have some effect on the joints. Symptoms may first show up during the childhood years, although some newborns with certain subtypes are diagnosed with EDS. If symptoms are mild, the disorder may not be diagnosed until the adult years. This informative and concise book guides you through the causes, tests, and treatment options for EDS.
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Previous page
  1. Print length
    84 pages
  2. Language
    English
  3. Publication date
    November 18, 2014
  4. Dimensions
    5.98 x 0.18 x 9.02 inches
  5. ISBN-10
    1503224406
  6. ISBN-13
    978-1503224407
  7. See all details
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Product details

  • Publisher ‏ : ‎ CreateSpace Independent Publishing Platform (November 18, 2014)
  • Language ‏ : ‎ English
  • Paperback ‏ : ‎ 84 pages
  • ISBN-10 ‏ : ‎ 1503224406
  • ISBN-13 ‏ : ‎ 978-1503224407
  • Item Weight ‏ : ‎ 4.5 ounces
  • Dimensions ‏ : ‎ 5.98 x 0.18 x 9.02 inches
  • Customer Reviews:
    3.5 3.5 out of 5 stars 29 ratings

Customer reviews

3.5 out of 5 stars
3.5 out of 5
29 global ratings

Top reviews from the United States

Amazon Customer
5.0 out of 5 stars What I planned on getting
Reviewed in the United States on September 26, 2019
Verified Purchase
I’m learning about my condition and this is one of my tools.
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KateraStillwell
1.0 out of 5 stars Very short book
Reviewed in the United States on January 5, 2019
Verified Purchase
There isn't much to this book, I expected it to be a lot thicker. It's only 83 pages, and that's in large print and it's not a "full size" book either.
The copyright is for 2014, and the table of contents only includes the 6 known types from then. But then in the "Causes" section, it lists out the new types from the 2017 diagnostic criteria change.
The section on differential diagnoses looks like it was pasted straight from a wikipedia page.
There are a lot of spelling and grammar errors.
The whole book feels like someone threw it together to just make money off of us EDS patients who are desperate for information on treatments we can pursue. But the actual "treatments" section is very short.
This is a waste of your money.
7 people found this helpful
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Jessica
4.0 out of 5 stars Educational for healthcare providers
Reviewed in the United States on August 26, 2018
Verified Purchase
Not as helpful as Id thought it would be. But i want to give it to my next doctor to read. There isnt nearly enough awareness about EDS
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A. INOUE
5.0 out of 5 stars Very informative
Reviewed in the United States on August 18, 2017
Verified Purchase
Helpful and has current information on EDS. Gave some information in other genetic disorders too!

What I realized is the information is still changing and getting updated.
One person found this helpful
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Cheryl
3.0 out of 5 stars Three Stars
Reviewed in the United States on February 18, 2016
Verified Purchase
good info
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Laura Spencer
1.0 out of 5 stars Waste of money
Reviewed in the United States on February 16, 2019
Verified Purchase
Way too basic, not much of a resource book at all. I do not recommend this book at all.
One person found this helpful
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E S.
4.0 out of 5 stars Helpful
Reviewed in the United States on September 23, 2015
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Top reviews from other countries

Joanne Huber
4.0 out of 5 stars Good beginner book
Reviewed in Canada on June 1, 2018
Verified Purchase
This is a good solid overview of EDS. It could have benefited from better layout and editing (the title on the cover has a typo - it's Ehlers Danlos, sections and subsections are distinguished by the same bold type headings which is somewhat confusing), and the cover is awful IMO. Nevertheless I recommend it to anyone with a recent diagnosis. I'd wager some of the web resources I've seen have sourced their info from this book (given consistency of writing style in the book I don't think it's the other way around). One part I've not seen elsewhere (as thorough) is brief descriptions of potentially comorbid conditions. It isn't a long book, but that may make it more helpful as a book to pass around to family, share with teachers, etc as it demands less time.
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kelly
1.0 out of 5 stars Very basic information - not worth purchasing
Reviewed in Australia on May 28, 2021
Verified Purchase
Very basic info available on Google top search results.
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serena hampson
5.0 out of 5 stars Five Stars
Reviewed in the United Kingdom on May 14, 2015
Verified Purchase
Very very good book
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A. Lowther
1.0 out of 5 stars One Star
Reviewed in the United Kingdom on July 31, 2015
Verified Purchase
not healpful one bit returning.
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